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EUROPEAN ORGANISATION FOR RARE DISEASES has 30 disclosed EU lobbying meetings from 2024-07-23 to 2026-05-18: 6 with the European Commission and 24 with Members of the European Parliament. Source: EU Transparency Register no. 93272076510-87, Commission disclosures and MEP declarations. Methodology

EUROPEAN ORGANISATION FOR RARE DISEASES

EU lobbying footprint — who they meet, and on what.

Register no.
93272076510-87 ↗
Disclosed meetings
30 (6 Commission · 24 MEP)
Period
2024-07-23 → 2026-05-18

Declared fields of interest: Business and industry · Digital economy and society · Employment and social affairs · European neighbourhood policy · Institutional affairs · Justice and fundamental rights · Public health · Regional policy · Research and innovation · Single market · Youth

Lobbying profile

as declared 2026-05-11
Category
Non-governmental organisations, platforms and networks and similar
Legal status
ASSOCIATION
Declared lobbying cost
€400,000
Lobbying FTEs
4
Members
3
LobbyFacts / Transparency Register source ↗

At a glance

Most-met policy areas
  • Health2
  • Social1
Commission officials
  • Jana Dabbelt2
  • Donata Meroni2
  • Maya Matthews1
  • Karolina Herbout-Borczak1

Disclosed meetings

Newest first. EC = European Commission, EP = Member of the European Parliament.

Lobbying in these areas

Who lobbies on Healthcare & Medical Devices →

Frequently asked

How many EU lobbying meetings has EUROPEAN ORGANISATION FOR RARE DISEASES disclosed?

EUROPEAN ORGANISATION FOR RARE DISEASES (EU Transparency Register no. 93272076510-87) appears in 30 disclosed meetings with EU officials and MEPs between 2024-07-23 and 2026-05-18: 6 with the European Commission and 24 with Members of the European Parliament.

What does EUROPEAN ORGANISATION FOR RARE DISEASES lobby on?

EUROPEAN ORGANISATION FOR RARE DISEASES's disclosed EU meetings most often concern Health, Social. Every meeting and its topic is listed with its official source on this page.

Who does EUROPEAN ORGANISATION FOR RARE DISEASES meet in Brussels?

Across its disclosed meetings, EUROPEAN ORGANISATION FOR RARE DISEASES has met Commission officials including Jana Dabbelt, Donata Meroni, Maya Matthews, and MEPs including ANDRIUKAITIS Vytenis Povilas, GONZÁLEZ CASARES Nicolás, BOSSE Stine. These are counts of officially disclosed meetings, not a measure of influence.

Primary sources

Every meeting above is a public disclosure by the European Commission or a Member of the European Parliament; counts are of disclosed meetings only and are not a measure of influence. Methodology. Data © European Union (Decision 2011/833/EU) & the European Parliament.

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